NGRL is organising a workshop as part of the EuroGentest project (http://www.eurogentest.org). This workshop will look at the collection of clinical-quality data into databases, including the need for phenotype data collection. Its aim is to bring together experts to develop guidelines for:

• Data Collection: tools for capturing data in the clinic, and the scope of data collection
• System implementation: setting up sustainable data collection and networks
• Standardisation: for data representation and exchange
• Quality Control: maintaining clinical quality throughout the data chain

Our invited speakers all have varied areas of expertise within the genetics community and we are pleased to announce that the speakers for this workshop include:

• Peter Taschner (Leiden University Medical Centre)
• Heidi Rehm (Harvard Medical School and Partners Healthcare)
• Christa Lese Martin (Emory University, Atlanta)
• Tim Smith (Human Variome Project, University of Melbourne)
• Jawahar Swaminathan (Wellcome Trust Sanger Institute)
• Anthony Brookes (University of Leicester)
• Mauno Vihinen (Lund University)
• Ana Rath (Orphanet, Paris)

Presentations from the workshop can be downloaded here.

For further information on this workshop please contact us at ngrl.contact@cmft.nhs.uk.